Featured Patient Story
Dylan Duncan
My mom, aunt and grandmother all died of Hereditary Amyloidosis. I was about 10 years old when I was first exposed to the devastating effects of the disease and it lived with my family and I until I was 17. Time passed after my mom died and at the age of 26, I started to experience some numbing sensations in my arm and hands. I am an artist and I play guitar, so ordinarily I’d suspect these to be the cause. However, I knew that one of the symptoms of Amyloidosis was carpal tunnel syndrome and that my mom also had issues with her hands before she got sick.
read moreLatest News Story Headlines
Intellia Therapeutics Announces FDA Regenerative Medicine Advanced Therapy (RMAT) Designation Granted to Nexiguran Ziclumeran (nex-z) for the Treatment of Transthyretin (ATTR) Amyloidosis with Cardiomyopathy
CAMBRIDGE, Mass., March 26, 2025 (GLOBE NEWSWIRE) -- Intellia Therapeutics, Inc.
Alnylam Announces FDA Approval of AMVUTTRA® (vutrisiran), the First RNAi Therapeutic to Reduce Cardiovascular Death, Hospitalizations and Urgent Heart Failure Visits in Adults with ATTR Amyloidosis with Cardiomyopathy (ATTR-CM)
Mar 20, 2025
− Novel Mechanism of Action Delivers Rapid Knockdown of Transthyretin, Addressing the Disease at its Source –
Mystery Solved: New Research Reveals Why a Key Protein Turns Deadly in Aging Bodies
Mystery Solved: New Research Reveals Why a Key Protein Turns Deadly in Aging Bodies
By Scripps Research Institute
Calendar & Upcoming Events
Heart Insights: A Conversation with an Amyloidosis-CM Cardiologist
Webinar Session: Wednesday, April 2nd, 2025 at 6 PM (ET) Zoom Meeting
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Featured Product
Ribbon Awareness Pin$8.00Wear your pin proudly and show everyone you are an amyloidosis ambassador.
Shipping :Tax and shipping included. Shipped within one business day of order.
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Featured Product
Zebra T Shirt$15.00FLASH SALE: Pick up our Zebra Shirt for $15.00 while supplies last! L, XL & XXL - SOLD OUT!
Wear our zebra logo shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, MShipping :Tax and US shipping included. Shipped within one business day of order.
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Featured Product
Logo T Shirt$15.00FLASH SALE: Pick up our classic T-Shirt for $15.00 while supplies last!
Wear our shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XL, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
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Updates in AL amyloidosis: Fast Forward in 2024!
Heather Landau, MD - Memorial Sloan Kettering Cancer Center - New York, NY
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